Meaningful patient involvement

Patients have expertise in their health management and preferences for treatment. Outcomes are better when patients and clinicians make decisions together, and we think this should apply to the way in which technology is developed too.

We are incorporating patient and public involvement (PPI) at every stage of our projects and have already benefited from extensive patient feedback. We held our first large-scale patient and public involvement event on 20th September 2016, bringing together a diverse group of patients and carers to hear about the work we are doing and help us decide on the best way to involve service users going forward. A video of the event is available here.

Following on from this meeting, we collaborated with Rosamund Snow, a patient, service user researcher and Patient Editor of the British Medical Journal, to create a formal patient and public involvement strategy. Rosamund's initial recommendations are available here, and we very much want to open up the discussion to the wider patient community. In the introduction to the document you'll find links where you can provide feedback via an online form, as well as register your interest in attending one of the consultation events that will be held across the UK in 2017.  

You can also contact us on patients@deepmindhealth.com.

Rosamund Snow

We were devastated to hear that Rosamund had died in February 2017.

When I heard the news about Rosamund, I was speechless. She had such passion, such strong principles. She cared so deeply about being inclusive and respectful of all people. We need so much more of that in this crazy world, not less. I learned a huge amount from my conversations with her, and we were all so proud and grateful to have her working with us. We will honour her vision and what she taught us.

– Mustafa Suleyman, co-founder of DeepMind

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Patient FAQ

  • What experience do I need to be a patient representative?

    No experience or specialist skills are necessary. Everyone is welcome. However, we are especially looking for patient representatives who are interested in and passionate about healthcare. We would like our patient group to bring a wide variety of experiences, so we’re particularly interested in hearing from people with a deep understanding of healthcare through being a patient or carer.

  • Is there any payment for being a patient representative?

    Yes. We value the contribution of patient representatives and want to make sure that involvement is properly recognised, remunerated and reimbursed. Our policy on this will be informed by guidance from Involve and other recognised organisations.

No experience or specialist skills are necessary. Everyone is welcome. However, we are especially looking for patient representatives who are interested in and passionate about healthcare. We would like our patient group to bring a wide variety of experiences, so we’re particularly interested in hearing from people with a deep understanding of healthcare through being a patient or carer.